Rebekah it’s been quite strong. For some reason I’m having major doubts and finding it hard to trust that God will heal Emy. We’ve heard from some docs that she will have major issues being able to eat, speak, and have other major deficits. We talk with the neurological team today at three. We are praying that there was nothing that will compromise her ability to get a transplant.
Please pray that Rebekah and I are sustained and ministered to by the Holy Spirit. This has been a long road, and this week has been the most difficult and sustained level of sorrow that we’ve ever had. Please pray that God heals Emy’s brain, and that she does not have deficits. Please pray that if it is God’s will that she will have deficits, that they are manageable and not too severe. Her worth is not defined by what she can or can’t do, or by what kind of life she will be able to live. She is an image bearer of the Most High. She is God’s child. I admit that my concerns are mostly earthly, and physical. I am ashamed that despite being made new in Christ, I still concern myself so much with what happens here on earth.
Please pray for us as the Spirit leads you.
Baby Menon 
Ezra, I appreciate your candor. There is no shame in admitting to your earthly concerns. You are human and experiencing something many of us will not. This is your journey. You are talking about moments in that journey. The Lumineers song, Dead Sea, describes what I envision with you and Rebekah. When you admire her strength and faith, she is your Dead Sea. She keeps you buoyant, keeps your head up…so you can breathe. Just breathe. When Rebekah needs a Dead Sea- it will be your turn to keep her from sinking.
As far as EmyG, she is a gift from God. She is God’s child. God’s plan is ALWAYS based in love and for the best and highest good for all involved. Even our challenges are based in love and are here to teach us. We are never given more than we can handle and we are never alone.
I will continue to pray for you ALL. I will pray that you each find moments of peace and comfort and can draw strength when you need it. God has the ability to create miracles. Miracles are not defined by medical charts. EmyG is a miracle and a treasure. I pray it is in God’s plan for EmyG to be here to teach her daddy that earthly concerns are not a valuable use of his time. It is time to lean into God’s love, Ezra. Let him lift your burden. You do not need to have the answer and the answer you have may not make medical sense. For now, just breathe, God’s in charge.
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Ezra and Becky your fortitude and love is an inspiration in a world that is sometimes overwhelmingly bereft of both. I am keeping you and Emy in my prayers, and will be praying especially hard at 3pm for you all.
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