Update 1/29

Emy leaked again on the 27th. Please pray that she stops leaking. The good news is that she is still getting a lot of fluid off with her dialysis, despite the leak. Her blood pressure was elevated this week because of the excess fluid, but today she had a few normal blood pressure readings. Hopefully she continues to have normal blood pressure. The WBC count in her PD fluid is in normal range, which is a good sign. Please continue to pray that the peritonitis resolves. Please pray that she doesn’t need her catheter replaced any time soon (right now she doesn’t need it replaced, but if her peritonitis doesn’t resolve after a long course of antibiotics, it may need to be replaced).

We love Emy G so much and are so thankful for her. She brings such joy. She is awake more nowadays; it’s so fun interacting with her and seeing her little personality shine through. This week she turned 2 months. We are so thankful for each day we’ve had, and for each day that is yet to come.

2 thoughts on “Update 1/29”

  1. This feels like a normal update for Emy G. I feel she is just riding the waves. You are prepared (as best you can be) for all changes that could happen. She is just chill. You know, like, “I know this is hard, but no worries…I’ve got this!”. As always we will continue to hold EmyG and family high in prayer. We offer all the support we can from the other side of a computer screen. She is fully loved and supported and she knows it. Its really a beautiful thing. Again, thank you for sharing your journey so openly.

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    1. Thank you for your continued support of Emy. It does feel like waves— we’re hoping they will become smaller waves as time goes on. We will ride them nevertheless: if the waters are tranquil or crashing down.

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