High Highs and Low Lows

Throughout this journey, we’ve been on a rollercoaster of emotions. This afternoon, I held Emy and gave her a bath. This evening, the white blood cell (WBC) count in her peritoneal dialysis output doubled from yesterday. This could be the start of another infection. It is not a confirmed infection. It feels that we live in the moments in between complications. We are so thankful for this entire journey. It can be overwhelming sometimes. Even though she is clinically looking good, the possibility of infection is again on the table. Please continue to pray for Emy— that she thrives and overcomes any infection. Tonight, I feel drained. That is ok. Today was wonderful. Today I cried. Tomorrow is another day.

“Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.”

Matthew 6:34
Emy 1/13/2021 after her bath
Emy 1/13/2021 sucking her fingers after her bath
Our family 1/13/2021

4 thoughts on “High Highs and Low Lows”

  1. Thank you for sharing and thank you for the photo shares. Yesterday I put some real thought into the fact that we are bombarded in our lives with incoming information without having/or taking the time to process our emotional reactions to that information. It can lead to being exhausted and feeling unclear or unsupported. I am glad you have the insight to live in the moment. Generally, if we view something in hindsight, with all of the facts, we understand it was something we could handle…even if we didn’t see it in the moment. Worry is wasted energy, however prayer and good thoughts of healing are never wasted. I will continue to surround your family with prayer and good thoughts of love, support and healing to the best of my ability. May it ease some of the heaviness that you experience in selected moments of the day. May it help you to rejoice in the uplifting moments of the day and treasure the small blessings, like bathing your baby, the treasure you have put so much of yourselves into creating and nurturing. You both (and Emy) are an inspiration to those observing your journey. Thank you for allowing us a peek in and hopefully you can draw on the energy of our prayers when your energy feels depleted.

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    1. Thank you for sharing your reflections and for your continued prayers for Emy and our family. We have enjoyed every moment with her and have learned to appreciate each small milestone. Support from family and friends helps get us through the tough times!

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  2. Emy looks adorable!! Lots of dark hair!! Continued prayers for healing & strength for all!! When this rollercoaster ride ends, it will so be worth it!!

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