12.29.2020 – doing well, but new infection

12.29.2020 Update – infection

EmyG has been doing very well the last week or so. Her blood pressure stabilized and her belly has returned to normal color. They have been able to increase her dialysis fill volumes and she has been pulling moderate to good levels. Rebekah and I have both been able to hold her, and the moments have been precious and sweet. She enjoyed her first Christmas with us in matching pajamas, and great presents from all of her family and friends.

Last night she had a high level of white blood cells in her peritoneal dialysis fluid. As a precaution they started her on a couple antibiotics in her dialysate. This morning the nephrologist informed us that she indeed does have peritonitis. This is not the most ideal situation. Peritonitis is an infection of the peritoneum, where the dialysate sits and pulls out the toxins from her blood. Because she has it, her dialysis is not going to be working as effectively. They are going to continue on with adding antibiotics to her bag and hoping that we will see an improvement in her dialysis in the next 24 hours.

For those of you who have been praying for her, please pray that her infection is healed quickly. Also please pray that her dialysis effectiveness improves.

6 thoughts on “12.29.2020 – doing well, but new infection”

  1. I appreciate your updates. I did see the one before Christmas, but didn’t log in. As for this one, EmyG remains in my prayers and of course holding your entire family high. Thank you for taking the time to keep us updated when your life is so full. I am truly grateful you have both been able to hold her, there is no better feeling than holding your own little miracle. God Bless you all and may he continue to bring healing and strength for EmyG.

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      1. I have an experience to share with you. Today I went on a nature attunement. That is 3 hours in nature without a phone or a watch. No other people just a connection with nature. For me that often is an 8 mi hike. Sometime in the 1:00 hour today I was walking along and EmyG popped in my head. I thought huh what is this about and I turn to look at the sun. I felt an overwhelming sense of joy, the kind of joy that creates heart palpitations and increases your breathing. I tried to figure out what it meant and I just kept feeling this incredible joy I looked up at the sun with gratitude and realized it felt like a bright spirit dancing with the sun. So much joy! Has things settled in I started walking along again. I started thinking if I ever have the chance to meet EmyG in person what would I say to her? I thought, “Dear One, you are an amazing spirit. What a blessing for your Momma and Papa to be chosen as your parents.” I wish there were words to truly express the pure joy and gratitude I felt today. It is a feeling that transcends my vocabulary.

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      2. Thank you for sharing this experience! I am so thankful for the joy Emy has brought to our lives and those around us. My prayer is that she continues to fight and bring joy to others during this journey.

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