First Infusion Update

Overall, the procedure went well. Baby girl had a long day but seems very happy to have the extra space after the amnioinfusion.

We had another structural ultrasound after the procedure which appreciated clubbed feet. This is a common feature of babies with no amniotic fluid as they don’t have room to grow properly. It could also indicate an underlying genetic disorder, but we won’t know which etiology to contribute this finding to until her genetic test results come back. Her stomach was not visible on ultrasound. To visualize the stomach on ultrasound, she needs to swallow fluid so the stomach pocket can expand. Time will tell if her stomach is present or not. Other than those two minor findings, she looks beautiful and seems to be otherwise normal (aside from the lack of kidneys).

Our team at Mayo Clinic was wonderful and very responsive after I had an allergic reaction to some of the medications I was given during the procedure. We are so grateful to have such a supportive, excellent team working on our case.

Please pray that her genetic test results come back normal so she can continue with the infusions. Also please pray that she swallows the fluid so her lungs develop. Thank you for your support and encouragement during this time.