Extubated

Today Emy G’s ventilator was removed. She is breathing room air without assistance. She was placed on a ventilator on Thursday evening prior to her catheter surgery (this was to sustain her during the surgery, not because she could not breathe on her own). The team decided to keep her on the ventilator to control her breathing during the first few days of dialysis. She is tolerating the dialysis and her blood pressure is stable, so they decided today was the day to remove the ventilator.

She is much more comfortable without the breathing tube. It is nice to see her whole face again. A line in her head was also removed last night, so she is looking less medically fragile. Her tummy is looking less blue, although it is still discolored. Please pray that this continues to heal.

Her dialysis is working well. She is doing well with 8 mL passes. It will be increased again in the coming days if she continues to tolerate it. As her dialysis amount increases, she will be able to receive more nutrition to aid in her growth. Please pray that she continues to tolerate the increasing amounts of dialysis.

Her blood pressure is still low but it is at a good level for her. Please pray that her blood pressure increases. She is still on high levels of blood pressure medication to maintain her current levels. It would be ideal if she could sustain a higher blood pressure without the medication.

We have experienced many highs and lows during Emy’s first week with us. Please continue to pray that she thrives. Please pray for me and Ezra as we navigate this rollercoaster of emotions. We are so thankful that she had a good day. She also opened her right eye today. It was the first time she saw me. She also heard her first book, “Snowmen at Christmas.” We cherish these firsts with Emy G. She is a precious child of God.