A Door Opened

Today, we consulted with several physicians regarding baby girl’s postnatal care. There are nuances in baby’s care that each physician approached a bit differently; this is the art of medicine. We are grateful for each opinion and word of guidance.

We have a definitive answer from one institution that is willing to take on baby’s case postnatally with dialysis as a bridge to transplant. This is the first confirmation of treatment to transplant we received after her diagnosis of 22q11.2 deletion syndrome. We are relieved to know she has a treatment option with the goal of her living a long and happy life. The answer could have gone the other way, which would have been devastating.

Please give thanks to the Lord for this door that is open. Please also pray for me and Ezra to make the best decision in terms of next-steps for baby girl. We have not made a definitive decision on where baby will receive postnatal care. Please pray for this decision to become apparent to us in the coming weeks.